The Rapper actor Nick Cannon Showed his full support as he visited the lupus research HQ.
Just days after being diagnosed with a “Lupus Like” disease he decided to show support and fin out how he can help.
Many celebrities like him if diagnosed want to give there full support. E.g. Mariah Carey
I’m sure we have all heard the well know saying and expression “Slow and steady wins the race” but in new developmental research results it does not. The Lupus drug that was meant to be so effective sadly has not shown any good results as hoped. Another downfall is that the sales have rapidly dropped because of the fail.
A great thing to do when you have a life-changing disease like lupus is to be inspired by other people’s stories. Although it is good to hear the facts, it is great to hear from people who have that firsthand knowledge because when you have lupus having a connection with another sufferer is a key part of getting through it. Psychotherapy on its own looks at the mental half of lupus as it is a very stressful and depressing illness. All in all scientists have found that just sharing stories and experiences can really help a person who only recently found they have lupus and lets them put lupus aside and carry on with there goals and aspirations
The S.L.E Lupus Foundation has sent out a special thanks to the well known author who also suffers from Lupus, V.C August for helping the lupus research with her new book which tells the reader about very private and personal journeys with Lupus. She has also started to take some of the income money for the books and give it to research to help the Foundation Programmes. The book is about the core problems with life and how it gets worse with a life changing illness. The S.L.E Lupus Foundation encourages people who suffer and who have suffered to come forward with their stories and experiences to help other people cope and last with the disease.
Find more at http://www.lupusny.org/
The Lupus Research Institute (LRI) introduced today its new “Distinguished Innovator Awards” program requesting applications for $1 million grants to conduct state-of-the-art research projects which aim to tranform the life of lupus sufferers. The prizes will be given to outstanding established scientists suggesting innovative schemes that join unconventional creativity with solid science to find the main causes of lupus and unlock the potential for a cure.
There is a dedicated lupus forum which is well worth following up. It can be found over at forum
It has over 10,000 registered users and includes the following sections:
Welcome / Introductions·
Recently Diagnosed with Lupus
Lupus Symptoms
Tests and Procedures
Lupus Treatments
Coping with Lupus
Disability, Insurance and Social Security Issues
Women’s Issues
Men & Lupus
Teens & Young Adults
Caregivers of People Living with Lupus
Lupus In The News
Carrying a baby for the full term without complications is likely when the lupus is stable
Over on spokanejournal.com we can read about the American College of Rheumatology’s annual scientific meeting in Chicago in November where a new study was presented which offered reassurances for women with stable lupus who are considering pregnancy.
Systemic lupus erythematosus, also called SLE or lupus, is a chronic inflammatory disease that can affect the skin, joints, kidneys, lungs, nervous system, and other organs of the body.
Over on xconomy.com there is a report of a new clinical trial from Trubion Pharmaceuticals for a drug for Lupus.
Read more at http://www.xconomy.com/seattle/2009/03/25/trubion-starts-lupus-trial/
Over on about.com there is a new video by Dr. Bob Lahita on diagmosing Lupus. Dr Lahita notes that Lupus is an autoimmune disease which is hard to diagnoes. He goes on to look at how doctors are trying to identify the disease.
